Coming Soon
B12 Society Patient Registry
A secure, anonymised database supporting B12 deficiency research.
The B12 Society Registry will be a research-grade database of anonymised patient data, designed to support academic research and improve understanding of B12 deficiency diagnosis, treatment, and outcomes.
Privacy & Governance
- • Explicit consent from all participants
- • No free-text fields that could re-identify
- • Clear governance and ethics oversight
- • GDPR compliant data handling
Aggregated Outputs
- • Symptom frequency dashboards
- • Time-to-diagnosis patterns
- • Misdiagnosis trends
- • Treatment outcome data
Register Your Interest
The registry is currently in development. Register your interest to be notified when we launch and learn how you can contribute.